Jon Paul – the young hero who inspired campaign
JON Paul Oxley was described by most who met him as an "inspirational" young charity campaigner who always put others before himself.
He fought chronic cystic fibrosis for more than 20 years and passed away surrounded by family and friends on Thursday, September 6 – a week after his 21st birthday.
Jon Paul, from Chaddlewood, had been on the transplant waiting list for 19 months when he died.
He had received five calls to say lungs had become available since being put on the waiting list in February 2011.
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But each time he travelled by ambulance to the specialist Harefield Hospital transplant centre in Middlesex he was told the organs were not viable.
Jon Paul had offered to donate his heart valves, the only part of his body suitable for donation due to his illness.
But his family have since been told they cannot be used because of the medication he was taking.
Having won a string of community awards for his tireless charity work and sports achievements, Jon Paul was loved by all who knew him.
Over the years Jon Paul raised more than £12,000 for the Cystic Fibrosis Trust in the hope of helping other sufferers of the condition.
He was named a Herald Young Hero in 2010 and received the Marjorie Lynden Stannator Award for his charity work.
The devoted youngster also received a Lifetime Achievement accolade at the Pride of Plymouth awards in 2009.
And in spite of enduring a painful wait for a transplant, he remained busy to the end of his life organising one of his popular charity football matches between the city's doctors and nurses.
Jon Paul's family have decided to continue his fight to get more people to join the Organ Donor Register.
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