THE VERY RARE DISEASE THAT TOOK BABY CHLOE'S LIFE
CHLOE was born in September 2007 and was just 15 months old when she died at Derriford Hospital.
She had suffered a very rare disease known as GM1 gangliosidoses which affects the acidic lipid materials in cells and affects the nervous system.
Katie was told Chloe had the disease when she was just six weeks old and her condition deteriorated from there.
The little girl was described as a "lovely baby" by Katie who said that even though Chloe couldn't sit up and had to be fed through a tube she was always "happy".
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"Chloe was in and out of hospital," said Katie.
"On December 18 she had trouble breathing and we were told she had just 24 hours to live. She passed away on December 19, 2008." Katie has struggled with the loss of her daughter and has battled depression, taking weekly visits to her daughter's grave. She now has a healthy nine-month-old called Mia but "will never forget" her first child.
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